Chiari Malformation (pronounced Kee-ah-ree) a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.

September 14, 2010

Great News!!!

I finally got the letter to bring jason home, and I got my MRI report yesterday no SYRINX! just six bulging discs I can handle that so onward to my head opening experiance bright and early on the 29th of Sept. at 7:30 AM I will be christened a Zipperhead. Will post more as I get it

September 11, 2010

Surgery Date

Well I saw the nuerosurgeon yesterday. He basically said "I'm not going to paint you a pretty picture of rainbows and flowers you have two choices you can go see the neurologist and get pain meds for the headaches but they are going to tell you just to get the Chiari fixed or we can skip that whole process and do the surgery. By no means is going to fix all of your symptoms but it will make you somewhat better." So on the 29th of Sept. I will be having my decompression surgery. I also had my full spinal MRI last night looking for Syrinx and for a tethered cord. The MRI guy wasn't supposed to tell me but he said he didn't see any Syrinx but he did see several bulging discs in my thoracic spine where that goes I don't know but at least now I can see the light at the end of this very long tunnel. I ask everyone for their prayers though not for me. It is going to be difficult road getting my husband home from Iraq in time and my kids know that something is up. Please keep my family in your prayers mine have already been answered.

September 09, 2010

Worst Days

This is turning out to be one of the worst days ever. My head is pounding my hands are shaking and I am having to rely on my husbands supervision to help me get my son from school today. This really blows! I cannot wait to see the surgeon tomorrow and beg for this surgery I can't keep living like this

September 06, 2010

Weekend

Had a great weekend despite being sick. Saw my new nephew and man is he handsome. 8lbs 12oz. My brother Cody finally got to meet my 2yr old son conner which was a first. We haven't seen cody or his wife lindsay in nearly 3 yrs. Went out to my aunts church bazzar and I won a game of bingo and my cousin won my son Seth a 3ft tall stuffed bannana lol It was a great weekend and a long drive home but we survived lol

September 03, 2010

Sleep HA

Well I guess the sandman thought it was cool to skip my house last night oh well I'm still headed to San Antonio today I laugh in your face Sandman you won't keep me down

September 02, 2010

Interesting few days

Well the last few days have been very interesting. I have finally gone two days without a headache. On the downside when I took my walking test for school and was shaking by the end, but I did it. This cane thing is starting to make my shoulder hurt but I guess its a necessary evil to keep from falling flat on my face lol . My son decided he needed a hair cut at school yesterday he now has two bald spots on top of it. I had my Art Appreaciation test today and actually got a perfect score. I am so excited to head to San Antonio tomorrow. My nephew is on his way I can't wait till he is born and I get to see my brother that I haven't seen in nearly 3 years. So much to cram into such a little weekend. See you all on the flip side