Chiari Malformation (pronounced Kee-ah-ree) a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.

August 24, 2012

Meds

I must be getting immune to my meds I had a killer migraine start building at 3 pm yesterday so I took a relpax and naproxen didn't touch it so at 8 pm I took another relpax my propinalol, trazadone, phinergan, and another naproxen still nothing. By ten hubby had to take me to the ER. They gave regalan and Benadryl still nothing. Then they gave steroids and morphine finally relief. Now if only I could sleep. Time to make an appointment with my neurologist and switch meds.

August 09, 2012

So Tired

Not only could I not sleep last night but this morning I wake up and every joint in my body is on fire and I have a migraine to boot. I am out of meds so I will be calling my doctor as soon as they open today to see if he can get me in for a refill. It didn't help last night that my daughter is teething so she was cranky at the times I could fall asleep for a bit. I hope and pray that this goes away in time for me to spend some quality time with my kiddos I want to take them to the spalsh park sometime today. I just want to spend some quality time with them.

August 08, 2012

My Conquer Chiari Walk Fundraiser Page

https://www.conquerchiari.org/ccwaa12/TiffanyPerez Please Sponsor Me Help Raise funds for research

My favorite Informational Website

http://www.conquerchiari.org/index.html They have alot of information and I would like to invite you to the Conquer Chiari Walk in Dallas this Sept on the 22. the information is on this website as well. Registration is free and you can purchase a T-Shirt through here as well

I found this "You might have Chiari If" and thought you would enjoy

Almost 2 Weeks

Well it has been almost 2 weeks since I had the Botox injections to try and stop my migraines and it hasn't worked. I can't say that I am surprised since none of my meds want to work. But I had gotten my hopes up that it would. I mean seriously after 31 injections into my head, neck and shoulders you kind of expect something would happen. Sadly, I have had a migraine for four straight days now. I had a few after the injections but they said give it time to work. I think I have and I will not be going back for this again.