Update

I finally have the date of my Cine MRI and my neurosugeon appointment They are both on the 10th of Sept. At least I will know when things will start happening after that I cannot wait. Have been cleaning house with disinfectant today since little one caught the bug at school all I need to do now is the dishes Wahoooo a good day!!!!

Goodmorning

Well last night was rough ended up falling asleep on the couch with a migraine and couldn't get comfortable. Got up to get my oldest ready for school. Poor baby is sick. Looks like he is staying home today and going to the doctor instead. Both my boys are laying down under the covers and watching the story of joseph a rare occurence lol Hoping for a good day and that my son starts feeling better soon

People

People are getting on my nerves they think that they know more than my doctors and telling me I am making up symptoms for attention. They don't seem to realize I have had this my whole life and the symptoms are now rearing their ugly heads. Well if they want to be like that then they are not really family. This is hard and stressful for me I don't like feeling this way I guess from now on I will not be telling them anything and when things happen I'm not going to tell them I don't need negativity and I don't need people telling me I shouldn't be feeling this way. I need support now not scorn or riducule. What is going on is me and my husbands business. The only peoples opinions I care about are my husbands and Gods. So unless you are going to be supportive and helpful then please keep your comments to yourself.

Stressful

Today has been a stressfull but blessed day My leg was weak and my head feels like its burning but on the good side we went to church this morning and this evening we went back and Susan got baptised and we had rootbeer floats afterwards. Came home and started dinner. Really cannot wait to drive to my parents place next weekend and seeing my brother I haven't seen in almost 3 years. Now we are watching A kid in Aladins Court.

Diagnosis to present

8-17-2010
Went in for the MRI near the end I started getting a burning sensation on the back of my head. By this point I had already had a migraine for 2 days
8-18-2010
Day 3 of migraine. Got a call at 2:45 pm with MRI results Chiari I Malformation with compression of my spinal cord. Took tramadol before bed for the pain. I slept two hours that night.
8-19-2010
Day 4 of migraine still no pain relief and another nights sleep lost
8-20-2010
Feeling exhausted and feel like the back of my head is on fire. Called my doctor at 8:30 they said they would call me back. Tired weak and nauseas
Talked to Doc and he has referred me to a Neurosurgeon named Dr. Trammell was told I wouldn't be able to get an appointment for three weeks.
8-21-2010
Got about 5 hours sleep last night which is a vast improvement so I am keeping a good attitude.
John 14:27 says Let not your heart be troubled, neither let it be afraid That is my goal for today
The pain has gotten worse as the day progressed the dizzieness and the burning in the back of my head are whats bugging me the most.
8-22-2010
I woke up this morning and went to take the dogs out to the bathroom my hands started to shake. Got dressed for church was singing when I got really dizzy so I sat down and tried to cross my legs and found I had to pick my leg up and over to cross them.
8-23-2010
This was one of the worst days but also on a good note I finally have an appointment with Dr Trammell on the 10th at 8:30 am
8-24-2010
woke up this morning to my left leg not working at all. It took about ten minutes for the feeling of being able to move to come back but now it just feels like its asleep and has been like that all day

Back Story

I have been having dizzy spells where I would loose my vision for most of my adult life. But after my horse accident in 2007 they got more frequent. I had my second son in 2008 and after I received the epidural thats when the pain started with the headrushes. Just with the headrushes at first. Let me explain the pain it feels like someone hammering a nail into the back of your head. Then the pain started coming any time I raised my voice again not all that frequent maybe just once a month or so. The last several months though the pain started coming once a week at first then several times a week. The last two months though it has been almost a daily occurence and I thought ok I have migraine headaches. I was diagnosed 3 months ago with IBS as well not thinking anything was related I went to my doctor 2 months ago and asked him if I was anemic because I was exhausted all the time. No matter how much I slept I always woke up tired. Then the headaches got to much for me to handle so this last month I went in to see him again feeling like this was all in my head and they were going to think I was crazy. I brought up the headaches too him and said I had found something on the internet that I thought explained everything. He was very accomodating and said sure tell me and we will look into it. I told him I thought it could be a Chiari Malformation. He said those are really rare and I think what you have is Migraine headaches but lets do an MRI to be sure there is nothing funky going on. I said ok and off to MRI I went a week later. I had the MRI at 4 on a Tuesday by 2 on Wedsnday I got a phonecall from my doctor. He said Tiffany you were right You have a Chiari Malformation type 1. So I got off the phone with him in shock I went straight to the hospital and picked up a copy of my mri and my results I have a 1.14 cm decention of the cerebellar tonsils past the foramen magnum.